Thursday April 26, 2018

Battle for Life: India’s First Harlequin Baby dies after 48-hour struggle in Nagpur

Harlequin ichthyosis is a very rare disease, reported to occur once in every 3,00,000 thousand babies

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A doctor holds India's first Harlequin baby at a hospital in Nagpur, Maharashtra.Punjabupdate/Twitter
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  • Newborn babies affected with harlequin ichthyosis are covered with plates of thick skin that crack and split apart
  • This rare condition occurs if both the parents carry recessive genes of Harlequin
  • The longest period of time anyone with this condition has survived is a girl from Pakistan, who passed away at the age of 24

NAGPUR: In an unfortunate incident in Amravati in the Vidharba region of Maharashtra, a Harlequin baby was born to a farmer’s couple on Saturday, June 11. The news has received wide publicity in several major dailies of India.

Harlequin ichthyosis is a very rare disease, reported to occur once in every 300,000 thousand babies. According to Hindustan Times, Dr. Avinash Banait, who delivered the baby, said: “Harlequin ichthyosis is a very rare severe genetic skin disease. In such cases, the child’s whole body is encased in an ‘armor’ of thick white plates of skin, separated with deep cracks. In addition, the eyes, ears, private parts and the appendages may be abnormally contracted.”

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Infections can be easily caught as the external skin is never fully developed and internal organs are largely exposed to the outside atmosphere. Constant care is required to keep the baby’s body moisturized. In their case, the doctors used petroleum jelly to moisturize the baby’s skin.

Usually, doctors can identify this condition within four months of pregnancy through a 3-D ultrasound and advise the parents to terminate the fetus.

Harlequin
Harlequin fetus. Image source: Wikimedia comons

Newborn babies affected with harlequin ichthyosis are covered with plates of thick skin that crack and split apart.  The thick skin plates can pull at and distort the infant’s facial features. The tightness of the skin pulls around the eyes and mouth, forcing the eyelids and lips to turn inside out, revealing the red inner linings.

In the case of the farmer’s baby, there were no ears and only slits in place of eyes. It was covered in thick scales and weighed around 1.8kg at the time of birth, said the Nagpur Times report.

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This rare condition occurs if both the parents carry recessive genes of Harlequin. Recessive genes mean that the trait is carried by the parents, but not shown physically.

The mother was not allowed to see the baby until two days later. When presented with her child on the second day, in the presence of a psychologist, she reportedly broke down.

The baby passed away two days later on Monday, June 13, in the afternoon. It is the first recorded case of Harlequin ichthyosis in India. The longest period of time anyone with this condition has survived is a girl from Pakistan, who passed away at the age of 24.

-Adapted and prepared from various sources by NewsGram staff with assistance by Saurabh Bodas, an intern at NewsGram. 

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  • Vrushali Mahajan

    Doctors say, Harlequin affected babies should be aborted immediately as they have negligible chances of surviving. But as this baby was born in a farmer’s house, they couldn’t afford to get a check up done during pregnancy

  • Paras Vashisth

    This is an unknown disease.So for awareness,government should take some steps regarding this.

  • Vrushali Mahajan

    Doctors say, Harlequin affected babies should be aborted immediately as they have negligible chances of surviving. But as this baby was born in a farmer’s house, they couldn’t afford to get a check up done during pregnancy

  • Paras Vashisth

    This is an unknown disease.So for awareness,government should take some steps regarding this.

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When Khadi Transcends Boundaries

Indian Leading Designers Showcased collections using Khadi

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'Khadi - Transcending Boundaries' here.
'Khadi - Transcending Boundaries'. Pixabay

India’s leading designers Rohit Bal, Anju Modi, Payal Jain and Poonam Bhagat showcased collections using khadi at Fashion Design Council of India (FDCI)-presented ‘Khadi – Transcending Boundaries’ here.

The event, handspun around the country’s fabric of freedom Khadi in collaboration with Khadi Village and Industries Commission (KVIC), was a part of the SME Convention 2018 hosted by Ministry of Small and Medium Enterprises (MSME) on Monday night.

The designers showcased innovative modern twists to khadi ensembles in colours of white, black, indigo and mustard.

Representational image for a showcase event of KHADI.
Representational image. PIxabay

Giriraj Singh, Union Minister MSME, was the guest of honour and he thanked FDCI President Sunil Sethi, who was jubilant at the fashion show.

Khadi’s celebration was also witnessed by other prominent personalities like Mukhtar Abbas Naqvi, Union Minister of Minority Affairs, Meenakshi Lekhi, MP Lok Sabha, ad guru Prahlad Kakkar, KVIC Chairman Vinay Kumar Saxena, MSME Secretary Arun Kumar Panda and some international delegates.

“We would like to thank KVIC and Khadi India for believing in us. We will strive to promote Khadi through multi-faceted and meaningful drives which will bring to the fore its true potential and catapult it in the global arena,” said Sethi.  BollywoodCountry