Thursday February 21, 2019
Home World Pete Frates: ...

Pete Frates: The Man who inspired Ice Bucket Challenge is Hospitalized Again

The inspiration behind the viral ALS Ice Bucket Challenge, Pete Frates, has been hospitalised

0
//
Pete Frates
The ALS Ice Bucket Challenge with Pete Frates. Twitter
  • Pete Frates, a former Boston College Baseball Player, inspired millions when he first started the Ice Bucket Challenge
  • Frates suffers from Lou Gehrig’s disease and was hospitalized again on Sunday
  • The ice bucket challenge is a challenge passed on to friends and family to further create awareness about the ALS disease 

Massachusetts, July 4, 2017: Pete Frates, born in Beverly Massachusetts, is a former professional Baseball player. He later moved to Hamburg, Germany to play and coach young baseball players there.

In March 2012, Frates was diagnosed with Amyotrophic Lateral Sclerosis (ALS), more particularly known as the Lou Gehrig’s Disease. At the time, Frates was age 27. The disease breaks down the nervous system and at the time had no cure.

Pete Frates
Pete Frates, a former Boston College Baseball Player. Twitter

Since the revelation, Frates and his family have tried to raise funds and donations in order to cure his disease.

Frates inspired a social media mega-viral act called the Ice Bucket Challenge, involving a bucket of cold Ice being dumped on the person voluntarily in order to raise awareness for the disease as well as urge donations and funding. You either did the challenge or donated some money to the charity fighting the disease. Many people did both making the awareness a success.

Many celebrities took the ALS Challenge. Donald Trump’s video went viral, along with the likes of Justin Bieber, Kardashians, Beckhams and others.

Stephen Hawking nominated his children, while Barack Obama declined his nomination but donated $100 million to the campaign.

Pete Frates
Donald Trump accepted the ALS Ice Bucket Challenge. Twitter

The ALS Ice Bucket Challenge raised a grand total of more than $200 million. The money went into research at the University of Massachusetts Medical School who successfully discovered a new gene called NEK1. This gene is linked to 3% of ALS patients and could be the potential help for discovering counter-acting drugs.

The ALS Association will now fund the research to be tested on mice for a better understanding of how the gene works out. A further funding of $3.5 million was utilized by researchers at Columbia University to carry out genetic sequencing of 1,500 ALS patients.

ALSO READ: Chilean Scientists Produce Biodiesel From Microalgae which can Power Vehicles

To further support the ALS communities, $23 million has been funded to further support the patients. In Pensylvania, Rhode Island, and Tennessee the patients can now have more sessions with speech pathologists, stairs and lifts for handicapped, and more training for caregivers and counselors, mentioned a news portal.

The ALS Ice Bucket Challenge has also motivated other communities to create awareness about their issues and gather public support.

Pete Frates
Pete Frates. Twitter

Pete Frates has been admitted to the hospital on Sunday Morning. His family stated that “he is resting comfortably” at the General Hospital in Massachusetts. They continued that Pete is “fighting the beast ALS-like a superhero.”

Pete Frate’s act of courage has been instrumental in the efforts of medical science to find out more about the ALS disease.

– prepared by Saksham Narula of NewsGram. Twitter: @Saksham2394

Next Story

Indian IT Act Silent On Social Media’s Manipulative Role

With a wide array of social media analytics tool available online it is not even difficult to spot the right influencers for their advertising programmes.

0
social media
While celebrities with huge following running into millions on social media are known as macro influencers, even some people with small number of followers can earn big sum of money as influencers. They are known as micro influencers. Pixabay

If the Cobrapost investigation which revealed that several Bollywood celebrities were willing to pass views of political parties as personal opinion for money shook your conscience, but there is not much that you could do to restrict them from doing so because the relevant Indian law is silent on this matter.

The investigation revealed that more than 30 Indian film and TV industry actors/artistes agreed to spread the propaganda of political parties through their social media accounts for money.

“Taking money for tweeting on behalf of political parties is definitely unethical, but it is not illegal. The Information Technology Act, 2000 is completely silent on this,” Pavan Duggal, one of the nation’s top cyber law experts, told IANS.

What the investigation unearthed was just the tip of the iceberg. The rise in popularity of social media platforms actually opened up a relatively new advertising economy driven by “influencer marketing”.

social media

Just as social media companies have come up with transparency rules for political ads, they should have similar features for influencers so that people can distinguish between commercial space and personal space. Pixabay

Marketing firm Mediakix estimated that influencer marketing on Instagram alone could reach $2 billion by the end of this year from $1 billion in 2017.

While Instagram has over a billion monthly active users globally, its parent company Facebook has over 2.3 billion monthly active users and over 16 million people log in to Twitter every day. WhatsApp is another powerful platform which has over 200 million users in India.

The kind of reach that these social media platforms have can offer some idea about how big the influencer marketing business could be. Important here to mention is that it is not just celebrities who are the stars in this game.

While celebrities with huge following running into millions on social media are known as macro influencers, even some people with small number of followers can earn big sum of money as influencers. They are known as micro influencers.

With a wide array of social media analytics tool available online it is not even difficult to spot the right influencers for their advertising programmes.

“In the starting, celebrities were used as influencers for brand endorsement and marketing purposes, however, after social media, now everyone is a celebrity and everything is business including politics,” social media expert Anoop Mishra said.

In countries like the US, it is mandatory to put proper disclosure on paid posts. But only a few follow the rules.

whatsapp
With the elections coming, political parties are not complaining much. A top WhatsApp executive recently even warned political parties against abusing its platform.
Pixabay

In India, due to lack of user awareness, it is even more difficult distinguish between a paid post and personal opinion.

With the elections coming, political parties are not complaining much. A top WhatsApp executive recently even warned political parties against abusing its platform.

“More than 10,000 official WhatsApp groups have been created by a leading political party to slam its rivals on social media,” Mishra said.

“Political discourse is going to be impacted by social media influencers. There is no two opinion about it,” Duggal said, adding that the consequences of this can be very serious as social media platforms are being used to create a highly-polarised atmosphere in the country.

Also Read: Socialism is Making a Comeback Among U.S. Democrats
Just as social media companies have come up with transparency rules for political ads, they should have similar features for influencers so that people can distinguish between commercial space and personal space.

“Manipulation of social media platform for personal gain must be brought under the ambit of law without putting barriers on free speech,” Duggal added. (IANS)