Monday November 12, 2018

Battle for Life: India’s First Harlequin Baby dies after 48-hour struggle in Nagpur

Harlequin ichthyosis is a very rare disease, reported to occur once in every 3,00,000 thousand babies

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A doctor holds India's first Harlequin baby at a hospital in Nagpur, Maharashtra.Punjabupdate/Twitter
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  • Newborn babies affected with harlequin ichthyosis are covered with plates of thick skin that crack and split apart
  • This rare condition occurs if both the parents carry recessive genes of Harlequin
  • The longest period of time anyone with this condition has survived is a girl from Pakistan, who passed away at the age of 24

NAGPUR: In an unfortunate incident in Amravati in the Vidharba region of Maharashtra, a Harlequin baby was born to a farmer’s couple on Saturday, June 11. The news has received wide publicity in several major dailies of India.

Harlequin ichthyosis is a very rare disease, reported to occur once in every 300,000 thousand babies. According to Hindustan Times, Dr. Avinash Banait, who delivered the baby, said: “Harlequin ichthyosis is a very rare severe genetic skin disease. In such cases, the child’s whole body is encased in an ‘armor’ of thick white plates of skin, separated with deep cracks. In addition, the eyes, ears, private parts and the appendages may be abnormally contracted.”

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Infections can be easily caught as the external skin is never fully developed and internal organs are largely exposed to the outside atmosphere. Constant care is required to keep the baby’s body moisturized. In their case, the doctors used petroleum jelly to moisturize the baby’s skin.

Usually, doctors can identify this condition within four months of pregnancy through a 3-D ultrasound and advise the parents to terminate the fetus.

Harlequin
Harlequin fetus. Image source: Wikimedia comons

Newborn babies affected with harlequin ichthyosis are covered with plates of thick skin that crack and split apart.  The thick skin plates can pull at and distort the infant’s facial features. The tightness of the skin pulls around the eyes and mouth, forcing the eyelids and lips to turn inside out, revealing the red inner linings.

In the case of the farmer’s baby, there were no ears and only slits in place of eyes. It was covered in thick scales and weighed around 1.8kg at the time of birth, said the Nagpur Times report.

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This rare condition occurs if both the parents carry recessive genes of Harlequin. Recessive genes mean that the trait is carried by the parents, but not shown physically.

The mother was not allowed to see the baby until two days later. When presented with her child on the second day, in the presence of a psychologist, she reportedly broke down.

The baby passed away two days later on Monday, June 13, in the afternoon. It is the first recorded case of Harlequin ichthyosis in India. The longest period of time anyone with this condition has survived is a girl from Pakistan, who passed away at the age of 24.

-Adapted and prepared from various sources by NewsGram staff with assistance by Saurabh Bodas, an intern at NewsGram. 

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  • Vrushali Mahajan

    Doctors say, Harlequin affected babies should be aborted immediately as they have negligible chances of surviving. But as this baby was born in a farmer’s house, they couldn’t afford to get a check up done during pregnancy

  • Paras Vashisth

    This is an unknown disease.So for awareness,government should take some steps regarding this.

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Twitter Takes Multiple Steps To Curb Misinformation Before Elections in India

More than 80 per cent of the Twitter accounts linked to spread of disinformation

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Twitter, tweets, India
The Twitter logo appears on a phone post on the floor of the New York Stock Exchange.. VOA

Twitter is taking “multi-variable” steps, including the use of Artificial Intelligence (AI) tools, to curb the spread of misleading information on its platform ahead of 2019 general election in India, Co-Founder and CEO Jack Dorsey said here on Monday.

Addressing a Town Hall-style meeting at the Indian Institute of Technology-Delhi (IIT-D), Dorsey said fake news is a way too big category.

“The real problem is not misinformation per se as jokes can also be categorised as misinfomation. But misinformation that is spread with the intent to mislead people is a real problem,” stressed the Twitter CEO who is in India on a week-long maiden visit.

Dorsey, who got a rousing reception at IIT-D with the students wildly cheering the young entrepreneur, likened solving the problem of misleading information to that of addressing a security issue, or building a lock.

Twitter, India
Twitter Chief Executive Officer Jack Dorsey testifies before a Senate Intelligence Committee hearing on foreign influence operations and their use of social media on Capitol Hill. VOA

“No one can build a perfect lock, but we need to stay ahead of our attackers. AI could probably help,” Dorsey told the audience.

Earlier in the day, the Twitter CEO met Congress President Rahul Gandhi and discussed various steps the social network was taking to curb the spread of fake news and boost healthy conversation on its platform.

Dorsey also met Tibetan spiritual leader the Dalai Lama over the weekend. He was also expected to meet Union IT Minister Ravi Shankar Prasad in the wake of the growing criticism over Twitter’s role in the spread of misinformation and fake news as India faces Assembly polls in five states in November-December ahead of next year’s general elections.

Twitter, India
Twitter on a smartphone device. Pixabay

Twitter, along with other social media platforms, including Facebook, came under intense scrutiny of policymakers in the US for their failure to stop the spread of misinformation by Russia-linked accounts on their platforms during the 2016 Presidential election.

The micro-blogging site since then has stepped up its efforts to curb the spread of divisive messages and fake news on its platform.

To further protect the integrity of elections, Twitter recently announced that it would now delete fake accounts engaged in a variety of emergent, malicious behaviour.

India, elections
India’s Prime Minister Narendra Modi gestures as he addresses the gathering during the ‘Global Mobility Summit’ in New Delhi, India, VOA

As part of the new rules, accounts that deliberately mimic or are intended to replace accounts that were previously suspended for violating rules may be identified as fake accounts, Twitter said recently.

Also Read: Twitter Giving Its Users More Freedom to Report Fake, Suspicious Accounts

However, according to a Knight Foundation study released in October, more than 80 per cent of the Twitter accounts linked to spread of disinformation during the 2016 US election are still active. (IANS)