Battle for Life: India’s First Harlequin Baby dies after 48-hour struggle in Nagpur

Harlequin ichthyosis is a very rare disease, reported to occur once in every 3,00,000 thousand babies

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A doctor holds India's first Harlequin baby at a hospital in Nagpur, Maharashtra.Punjabupdate/Twitter
  • Newborn babies affected with harlequin ichthyosis are covered with plates of thick skin that crack and split apart
  • This rare condition occurs if both the parents carry recessive genes of Harlequin
  • The longest period of time anyone with this condition has survived is a girl from Pakistan, who passed away at the age of 24

NAGPUR: In an unfortunate incident in Amravati in the Vidharba region of Maharashtra, a Harlequin baby was born to a farmer’s couple on Saturday, June 11. The news has received wide publicity in several major dailies of India.

Harlequin ichthyosis is a very rare disease, reported to occur once in every 300,000 thousand babies. According to Hindustan Times, Dr. Avinash Banait, who delivered the baby, said: “Harlequin ichthyosis is a very rare severe genetic skin disease. In such cases, the child’s whole body is encased in an ‘armor’ of thick white plates of skin, separated with deep cracks. In addition, the eyes, ears, private parts and the appendages may be abnormally contracted.”

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Infections can be easily caught as the external skin is never fully developed and internal organs are largely exposed to the outside atmosphere. Constant care is required to keep the baby’s body moisturized. In their case, the doctors used petroleum jelly to moisturize the baby’s skin.

Usually, doctors can identify this condition within four months of pregnancy through a 3-D ultrasound and advise the parents to terminate the fetus.

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Harlequin fetus. Image source: Wikimedia comons

Newborn babies affected with harlequin ichthyosis are covered with plates of thick skin that crack and split apart.  The thick skin plates can pull at and distort the infant’s facial features. The tightness of the skin pulls around the eyes and mouth, forcing the eyelids and lips to turn inside out, revealing the red inner linings.

In the case of the farmer’s baby, there were no ears and only slits in place of eyes. It was covered in thick scales and weighed around 1.8kg at the time of birth, said the Nagpur Times report.

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This rare condition occurs if both the parents carry recessive genes of Harlequin. Recessive genes mean that the trait is carried by the parents, but not shown physically.

The mother was not allowed to see the baby until two days later. When presented with her child on the second day, in the presence of a psychologist, she reportedly broke down.

The baby passed away two days later on Monday, June 13, in the afternoon. It is the first recorded case of Harlequin ichthyosis in India. The longest period of time anyone with this condition has survived is a girl from Pakistan, who passed away at the age of 24.

-Adapted and prepared from various sources by NewsGram staff with assistance by Saurabh Bodas, an intern at NewsGram. 

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  • Vrushali Mahajan

    Doctors say, Harlequin affected babies should be aborted immediately as they have negligible chances of surviving. But as this baby was born in a farmer’s house, they couldn’t afford to get a check up done during pregnancy

  • Paras Vashisth

    This is an unknown disease.So for awareness,government should take some steps regarding this.

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Here’s Why China is Predictable and Not Inscrutable

India could’ve easily predicted the Chinese coming on 5 August 2019

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The Chinese actions are far away from being Inscrutable. Pixabay

As the tensions rise between India and China along the borders in Ladakh, Shekhar Gupta in his article for The Print invokes an American political satirist P.J. O’Rourke.

Talking about his works Shekhar points out that in his ‘A Brief History of Man’, P.J. O’Rourke writes a small sentence “Meanwhile, in China, there were the Chinese.”. This sentence is relevant to us today.

Shekhar Gupta believes that the sentence conveys us a sense of resignation about the “inscrutable” Chinese. This thought happens to be familiar thought in the West.

“But we don’t live in the West. We’ve lived next door to China for as long as first civilisations grew.”, writes Shekhar Gupta

Let’s look at the history of Indian interactions with China since independance. What is inscrutable about it? Talking about the military assault across two fronts in 1962, it may have been a surprise to our leaders back then, but that is only because they were delusional.

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Chinese actions in respect to India are predictable now. Pixabay

From Chinese ultimatum to India to “return their stolen yaks and sheep” in 1965, to their appearance along the Ladakh frontier this year, China happens to be completely predictable and far from inscrutable. Especially keeping in mind Chinese actions in respect to India.

The push at Nathu La (Sikkim) in 1967 was probably to check out the resolve from India. Which they saw at its weakest — having fought two recent wars (1962 and 1965), famines, ship-to-mouth existence, political instability and a diminished Indira Gandhi. . The Indian response was a lesson they quickly learnt. What did the Chinese do after that? They have kept the peace for 53 years. Will you call that response evidence of Chinese inscrutability? They probed us, got a rude push-back, and decided to wait and stir the pot in different ways, at different times, says Shekhar Gupta in his artcile for The Print.

The Chinese kept the hold of what they wanted in 1962. According to Shekhar the truth is, they had it in their possession almost fully, barring small, tactically important slivers in Ladakh. They asserted their ownership and let their larger claim, Arunachal Pradesh, fully in Indian control, go militarily uncontested.

The Chinese never gave up claim on it. In 1986-87, they again checked us out at Wangdung-Sumdorong Chu (Arunachal), when they saw Rajiv Gandhi take India’s defence budget to a 4 per cent-plus of GDP. And once more, the response was firm and the Chinese backed off. The lesson we learnt according to Shekhar Gupta is that the Chinese won’t open fire randomly for the sake of it, Or when they are absolutely sure of an easy victory so they could be seen like ‘teaching an upstart a lesson’ as they did in 1962. Predictable.

Each and every action and response of China fits a pattern- Deliver a message, add leverage, and return, according to Shekhar Gupta.

India, China and Pakistan shared this unusual ‘triangulation’ in which China was using Pakistan to keep India preoccupied, said Former Indian Prime Minister Dr. Manmohan Singh during his tenure.

His idea was to break this ‘triangulation’ by seeking peace with Pakistan. He thought, that a country as big and powerful as China, would see less of an incentive for peace with India than Pakistan.

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Former Indian Prime Minister Dr. Manmohan Singh’s idea was to break this ‘triangulation’ by seeking peace with Pakistan. Wikimedia Commons

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Shekhar Gupta believes that today, that option is not so available, as hostility with Pakistan is central to the Modi-BJP politics. They’d rather make peace with China than Pakistan. That is why the lavish welcomes and frequent meetings with the Chinese leaders. The objective, still, is escaping that triangle.

Another instance of Vajpayee explaining the Chinese negotiating style. “Dekhiye, aap aur hum baithe hain aur vaarta kar rahe hain (see, you and I are sitting and negotiating),” he said. If two people require something and the first person asks to let go of something, the other will say no. Then the first person again asks for something little less, then again the other person might say no. But ultimately the second person will relent and let go of some. The Chinese would never do that.

Both these leaders underlined that the Chinese are consistent, and predictable. And that is why we should not be shoched or surprised by what they have unveiled across Ladakh. We should have anticipated it on 5 August last year when we made the big changes in Jammu & Kashmir. This Chinese move, like all others in 60 years, was fully predictable. Even the timing, says Shekhar Gupta in his article for The Print.

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COVID-19: Samsung Exclusive Stores get ‘Suraksha’ Certified

The initiative is aimed at the security and safety of customers and employees

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Samsung exclusive stores get 'Suraksha' certified in India. Pixabay

Samsung on Friday said all of its exclusive stores have been ‘Suraksha’ certified to ensure consumer safety at a time when social distancing is the new normal.

Suraksha Store is a public private initiative to ensure safe and secure environment for consumers and store employees.

The certification will ensure that consumers feel safe and confident when they visit stores to buy smartphones and other devices.

“The initiative will ensure that consumers and employees working at these Exclusive Stores feel confident about their well-being and safety,” Mohandeep Singh, Senior Vice President, Mobile Business, Samsung India said in a statement.

According to the company, to strictly adhere to government’s social distancing guidelines, the exclusive stores are encouraging consumers to maintain a minimum distance of 1.5 metre between themselves.

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A distance of 1.5 meters is to be maintained according to social distancing guidelines. (Representational Image). Pixabay

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Meanwhile, customers are encouraged to use digital contactless payments and swiping machines will be sanitized before being given to the customer to ensure the highest standard of hygiene is maintained across our Exclusive Stores.

Only a limited number of customers will be allowed within the store at any given point to avoid crowd formation, said Samsung India. (IANS)

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80% Maharashtra School Students Don’t Report Cybercrimes: Survey

It is also reportes that 33% students deleted content due to which they were targeted for cybercrimes

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37 per cent of the students revealed that they were affected by some sorts of cybercrimes. Pixabay

At least 80 per cent of school students in Maharashtra aged between 10-17 do not report cybercrimes they face online to their parents, teachers and the police, a new survey revealed on Thursday.

The study done with 1,148 children studying in the 6th-9th standard across 18 schools in Maharashtra, found that 33 per cent students deleted content due to which they were targeted for cybercrimes, while 31 per cent informed their friends about it.

The survey by a non-profit startup Responsible Netism and Cyber Peace Foundation, Maharashtra State Council of Educational Research and Training (MSCERT) was conducted between October 2019 to February 2020 to understand internet usage trends of children across Maharashtra.

The research found that 37 per cent of the students revealed that they were affected by some sort of cybercrime including their accounts being hacked, cyberbullying, being threatened online, harassment by strangers and even receiving pornographic content.

“Millions of kids in Maharastra today are being exposed to cybercrimes owing to the ease of access and anonymity that internet offers,” Sonali Patankar, Founder President, Responsible Netism, said in a statement.

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60 per cent of students faced other Cybercrimes such as cyberstalking, online gambling, etc. Pixabay

“Our research points to the fact that technology companies are not stringently safeguarding the interests of children towards ensuring their cyber wellbeing,” Patankar added.

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The findings showed that at least 60 per cent of students faced other crimes such as cyberstalking, online gambling, body shaming, added to inappropriate groups online, threatened online, etc.

According to the study, 46 per cent of the students revealed that they were dependent addicted to their devices (phones, tablets, computers) and it affected their studies. The report also revealed that Whatsapp and Tiktok are the two most-used apps by children in the state while PUBG and GTA are the most popular online games amongst children. (IANS)