Thursday January 24, 2019

Battle for Life: India’s First Harlequin Baby dies after 48-hour struggle in Nagpur

Harlequin ichthyosis is a very rare disease, reported to occur once in every 3,00,000 thousand babies

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A doctor holds India's first Harlequin baby at a hospital in Nagpur, Maharashtra.Punjabupdate/Twitter
  • Newborn babies affected with harlequin ichthyosis are covered with plates of thick skin that crack and split apart
  • This rare condition occurs if both the parents carry recessive genes of Harlequin
  • The longest period of time anyone with this condition has survived is a girl from Pakistan, who passed away at the age of 24

NAGPUR: In an unfortunate incident in Amravati in the Vidharba region of Maharashtra, a Harlequin baby was born to a farmer’s couple on Saturday, June 11. The news has received wide publicity in several major dailies of India.

Harlequin ichthyosis is a very rare disease, reported to occur once in every 300,000 thousand babies. According to Hindustan Times, Dr. Avinash Banait, who delivered the baby, said: “Harlequin ichthyosis is a very rare severe genetic skin disease. In such cases, the child’s whole body is encased in an ‘armor’ of thick white plates of skin, separated with deep cracks. In addition, the eyes, ears, private parts and the appendages may be abnormally contracted.”

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Infections can be easily caught as the external skin is never fully developed and internal organs are largely exposed to the outside atmosphere. Constant care is required to keep the baby’s body moisturized. In their case, the doctors used petroleum jelly to moisturize the baby’s skin.

Usually, doctors can identify this condition within four months of pregnancy through a 3-D ultrasound and advise the parents to terminate the fetus.

Harlequin
Harlequin fetus. Image source: Wikimedia comons

Newborn babies affected with harlequin ichthyosis are covered with plates of thick skin that crack and split apart.  The thick skin plates can pull at and distort the infant’s facial features. The tightness of the skin pulls around the eyes and mouth, forcing the eyelids and lips to turn inside out, revealing the red inner linings.

In the case of the farmer’s baby, there were no ears and only slits in place of eyes. It was covered in thick scales and weighed around 1.8kg at the time of birth, said the Nagpur Times report.

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This rare condition occurs if both the parents carry recessive genes of Harlequin. Recessive genes mean that the trait is carried by the parents, but not shown physically.

The mother was not allowed to see the baby until two days later. When presented with her child on the second day, in the presence of a psychologist, she reportedly broke down.

The baby passed away two days later on Monday, June 13, in the afternoon. It is the first recorded case of Harlequin ichthyosis in India. The longest period of time anyone with this condition has survived is a girl from Pakistan, who passed away at the age of 24.

-Adapted and prepared from various sources by NewsGram staff with assistance by Saurabh Bodas, an intern at NewsGram. 

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  • Vrushali Mahajan

    Doctors say, Harlequin affected babies should be aborted immediately as they have negligible chances of surviving. But as this baby was born in a farmer’s house, they couldn’t afford to get a check up done during pregnancy

  • Paras Vashisth

    This is an unknown disease.So for awareness,government should take some steps regarding this.

Next Story

Most Positive Buzz In India Created By Google in 2018: Report

YouGov "BrandIndex" also revealed the brands that noted the greatest improvement to consumer perception in 2018. 

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Google, smart compose
The Google name is displayed outside the company's office in London, Britain. VOA

Google created the most positive buzz in India last year, follewed by Facebook-owned WhatsApp and Google-owned YouTube, international research firm YouGov said on Wednesday.

Google had a Buzz score of 57.2 points, WhatsApp 55.7 and YouTube 52.9 points in the “2018 YouGov BrandIndex Buzz Rankings” in India.

“In the age of digital natives, it is no surprise that the top 10 list has a dominance of technology brands. Noticeably, financial brands have recorded good improvement to their buzz score in the past year,” YouGov India General Manager Deepa Bhatia said in a statement.

Google
The Google logo is seen at a start-up campus in Paris, France, Feb. 15, 2018. VOA

YouGov “BrandIndex” measures the public’s perception of brands on a daily basis across a range of metrics.

The rankings are compiled using Buzz scores from the entire year’s worth of data. Buzz scores measure whether people have heard anything positive or negative about a brand during the previous two weeks.

“According to the rankings, we see a surge in the popularity of digital brands and social networks. While the top 3 is dominated by technology giants, social networks like Facebook and Instagram park themselves at nine and 10, respectively,” said the report.

MakeMyTrip was at fourth place, followed by Amazon at fifth spot.

Google, Berlin
Google CEO Sundar Pichai and Philipp Justus, Google Vice President for Central Europe and German-speaking Countries, chat behind a Google logo during the opening of a new Google office in Berlin, Germany, Jan. 22, 2019. VOA

Cab hailing services like Ola and Uber managed to stay in the limelight for a large part of the year and grabbed seventh and eighth position, respectively.

Also Read: YouTube Bans Dangerous, Harmful Pranks From its Platform

Food-delivery platform Swiggy landed at the sixth spot in the top 10 list.

YouGov “BrandIndex” also revealed the brands that noted the greatest improvement to consumer perception in 2018.

In India, Zomato is the “most improved” brand of the past year, followed by Instagram and Kotak Mahindra Bank. (IANS)