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Delhi High Court Approves Health Ministry’s Proposal Rs 100 Crore Fund for Treatment of Rare Diseases
- Lav Aggarwal pointed out that there does not exist any particular definition of rare diseases due to the absence of epidemiological data
- Justice Manmohan highlighted that the corpus fund of Rs 100 crore mustn’t get lapsed
- There is a possibility of this fund getting wasted as the cycle of financial year being might now be from January to December
New Delhi, August 22, 2017: Lav Aggarwal, the Joint Secretary of the Ministry of Health & Family Welfare, delivered a presentation in the High court of Delhi to justice Manmohan. The subject of the presentation was National Policy for Treatment of Rare Diseases and it comprised all the significant details.
He pointed out that there does not exist any particular way to define rare diseases due to the absence of epidemiological data. Aggarwal added that a requirement of calculating our estimate exists as the current estimates cannot be depended upon. Along with this, he also indicated that the need of the hour is to make a balance between the primary issues of the health of the public.
While delivering his presentation, he said, “The biggest challenge with rare diseases is that they have mimicking symptoms of other diseases and thus, take years to get diagnosed. Moreover, there is a low pool of patients for research and hence, in the process of covering up for the cost of R&D, the treatment is expensive. Thus, strong measures need to be taken to make the diagnosis and treatment process easier.“ He added that considering aforesaid, the treatment of these rare genetic illnesses requires funds of about Rs 100 crore to initiate with as proposed by the policy. As mentioned in the National Health Mission, the governments at the state level must take a step forward to request the funds needed along with the names of diseases which can be provided by the central government from the corpus of Rs 100 crore.
Justice Manmohan highlighted that the corpus fund of Rs 100 crore mustn’t get lapsed. There is a possibility of this fund getting wasted as the cycle of the financial year might now be starting from January and ending in December.
Aggarwal recommended that in order to let the patients benefit directly, it would be a good step to keep the money handy for hospitals such as AIIMS. In contrast to Aggarwal, the Justice suggested that it will be better to allow money into a revolving fund in order to earn interest on this amount.
“The Honourable Court is very sensitive to the immediate implementation and utilization of the Rs. 100 crore corpus. It also rightly mentioned that the fund may be allocated and transferred to AIIMS and immediate steps need to be taken by Health Ministry to form medical expert committees of physicians at central and state levels. The states should screen and recommend patients based on standard formatted parameters and severity of the disease. “ said Manjit Singh (President, Lysosomal Storage Disorders Society). He said that the allocation of Rs. 100 crore needs to be revised and carried forward in the coming financial year as this fund is less to provide treatment to all the patients at present diagnosed with a rare disease.
The policy proposed the formation of an Inter-ministerial consultative committee along with a technical cum administrative committee. The former committee would be given the task of coordinating the initiatives undertaken by various departments and ministries. The task of the technical committee would be to manage and release the corpus funds as well as to develop technical requirements to identify and treat rare diseases. It will be set up at both the state and national levels. The committees will be formed and set up before the coming three weeks, i.e, last week of August.
Justice Manmohan, while appreciating the efforts taken by the Ministry commented, “The presentation has been very helpful in understanding the concept of rare diseases. However, some urgent orders are required to make the National Policy functional at the ground level. The two committees need to be appointed within a period of three weeks. The Ministry is directed to file a status report on or before November 30.”
Jurist Advocate Ashok Agarwal has been battling for the patients of rare disease and in his statement, he said, “The National policy is a landmark step. However, the policy can only be tested on the basis of the actual number of patients getting treatment. The patients should not start applying to the Delhi government for treatment and these applications should start getting processed.”
-prepared by Harsimran Kaur of NewsGram. Twitter @Hkaur1025
By Prerana Agarwal Saxena
In all the wedding excitement, it's easy to overlook the impact a wedding has on the environment. While everyone is making their big fat Indian wedding dreams come true, they are also adding their carbon footprint and undue energy consumption. Modern couples are now looking for ways to have a wedding with a sustainably conscious mindset. It's become about incorporating less waste, locally sourced and seasonal food, natural materials over the use of plastic. Mindful wedding planning and decor includes the use of recycled paper and goods along with eco-friendly venue needs. Check out this quick guide to achieve a sustainably conscious wedding without compromising on luxury:
Choose locally sourced material to uplift artisans
Sustainable can be luxurious too, incorporate some native flavour into the decor and theme. With the use of locally sourced materials and local artisans coming into play, the wedding instantly becomes sustainable. Include the work of local vendors ensure minimal packaging requirements, thus saving on unnecessary plastic and lamination. It also decreases the need for transporting elements from other cities and hence lowers the carbon footprint. For instance, at one of our weddings, we made use of sand art for a setup in Jodhpur. This helped promote local work while also being environmentally friendly with zero wastage of other materials. In another instance from Rajasthan, the traditional glass-blown technique was used to build decor items while giving a cultural touch to the destination wedding.
Sustainable can be luxurious too, incorporate some native flavour into the decor and theme. | Photo by Jason Coudriet on Unsplash
Say yes to recycling
One should be mindful and avoid the use of plastic and other non-recyclable materials in decor wherever possible. It can be a small step such as making a conscious switch from plastic water bottles to copper jugs or glass bottles. Also use artificial floral decor thus minimising the wastage produced from real flowers. This recyclable decor is then donated to various NGOs, further ensuring sustainable use of resources. Such steps, however small they might be, keep the environment free from the release of any additional carbon footprint.
One should be mindful and avoid the use of plastic and other non-recyclable materials in decor wherever possible. | Photo by Ravin Rau on Unsplash
Go for zero-waste wedding decor
Make use of fabric as it enhances the elegance of the wedding while being sustainable. Include vibrant colours apt to the theme of the wedding and bring in bright sprightliness with breathable fabrics. Ensure to include LED lights for lighting. They can be incorporated as string lights or be used on passageways with innovative decor items. They also help conserve energy and bring in soulful energy for nighttime decor. Choose virtual invitations, keeping up with the digital times. Make a conscious choice of plated dinner menus rather than a buffet as they allow less wastage of food and ensure enough food for guests in attendance.
LEDs can be incorporated as string lights or be used on passageways with innovative decor items. | Photo by Annie Spratt on Unsplash
Include Sustainable Gifting
Gift sustainable wedding favours -- gifts that grow. Offering a plant or a succulent, is a great idea. One can also gift recycled organic fabrics and cutlery or zero-waste kitchen and bathroom essentials to use in their homes as some distinct gifting options.
Gift sustainable wedding favours -- gifts that grow. | Photo by Kira auf der Heide on Unsplash
Acting in the best interest of the environment and the society, Theme Weavers Designs has started a social cause, Weaving Hope, where a part of their earnings along with food and decor are donated to social communities. Royal Rendezvous, is an event started by us to put India on the Global Map, inviting international wedding planners to India to experience the rich culture and heritage, also employing and displaying the work of local artisans to this international audience.
By applying the values of sustainability, you can reduce the energy consumed and the resources used as much as possible. Go ahead and have a luxurious zero-waste wedding and navigate into the world of green living! (IANS/ MBI)
Keywords: Luxurious , Gift, sustainable, wedding favours, gifts that grow. Gifting, recycling, locally sourced, material. zero-waste
The Tamil Nadu health department has administered 16,43,879 lakh doses of vaccine in the second mega vaccination camp organised by it. The state public health department in a statement on Sunday said that this has taken the total vaccination to one crore since the beginning of September till date. The vaccination was administered from 7 a.m. till 7 p.m. and the compiled data was made available late at night.
The health department officials also said that as the state has almost exhausted its quota of vaccines, there would not be any vaccines on Monday. Regular vaccination will resume after the vaccine supplies arrive from New Delhi, officials said. The state health department had expected to vaccinate 15 lakh people on Sunday in 18,824 centres spread across primary health centres, anganwadis, noon meal centres, government hospitals, schools and some auditoriums.
The health department officials also said that as the state has almost exhausted its quota of vaccines, there would not be any vaccines on Monday. | Photo by Mat Napo on Unsplash
Of the 16,43,879 people who were inoculated, a total of 10,85,097 received their first dose and 5,58,782 their second dose of vaccine, the statement said, A total of 9,66,568 people in the age group of 18-44 were vaccinated on Sunday and vaccines were administered on 5,02,578 people aged between 45- 59 in the mega vaccine camps.
State health minister Ma Subramanian, who inaugurated the vaccination at Pollachi, also visited the centres in six districts -- Coimbatore, Erode, Namakkal, Tiruppur, Dharmapuri and Salem. The state government, according to the health minister, is to receive the next allotment of vaccines on September 21. Minister while speaking to IANS said, "We will be receiving the next allotment of vaccines on September 21 itself and we will resume vaccinations immediately. The state has already touched one crore vaccine-mark in the month of September till date." (IANS/MBI)
Keywords: COVID, vaccine, vaccination camp, Tamil Nadu, India, vaccinated, mega camp
Festivals are just around the corner and while you brainstorm about OOTDs (outfit of the day), don't forget the right makeup. Hanisha Kapoor, COO, ArchiesBeauty.com shares makeup trends experimented by these Bollywood divas throughout 2021 for inspiration. While some stuck to the classics, others mixed it up... take a look:
The Classic Red Lip
We don't see a future where classic red lips go out of fashion. The right way to achieve this celebrity look is to focus on accentuating your lips and keeping the rest of the face minimal. Give your lips a good scrub to plump them, moisturize and follow it up with a red lip liner to define the shape of your lips. Now go on with the perfect shade of red and finish your look with a slick of eyeliner, minimal concealer, and foundation.
We don't see a future where classic red lips go out of fashion. | Photo by Ina Garbé on Unsplash
No Makeup Look
Deepika Padukon is the perfect example of a no-makeup look. This natural beauty does a wonderful job of achieving the minimal soft look by softly cover any dark spots or blemishes and highlighting features she's most proud of. To achieve this start with concealer and use small dots to brighten your darker areas like under eye, corner of the nose or upper lip, and any visible spots, and set it up with loose powder. Apply a soft pink lipstick, light blush, and mascara.
Deepika Padukon is the perfect example of a no-makeup look | Wikimedia Commons
This look shouts pink. When it comes to rosy looks, Janhavi Kapoor does a phenomenal job. Everyone should try a rosy look once in a while. As we are focusing on only one shade, this look is pretty easy to achieve. Bring out your favourite pink lipstick, favourite pink blush, and a matching shade of eye shadow. Start with the base - concealer, and foundation and set it up with loose powder. Follow it up with eyeshadow, lipstick, and blush. Remember to draw a line by not using any pink mascara, eyeliner, or a bold shade of lipstick, as this is meant to be soft on the eyes.
When it comes to rosy looks, Janhavi Kapoor does a phenomenal job. | Wikimedia Commons
Glass Skin Makeup
The glass skin makeup is inspired by Korean skincare. This look is slightly complex with an equal focus on skin before makeup, so slather on those moisturizing serums and creams to prep your skin first. Start with a highlighting primer, keep your foundation and concealer minimal to avoid looking cakey. Follow it up with soft blush & nude lips and lots and lots of highlighter. Use the highlighter on the main points of your face, like upper cheekbones, the centre of the forehead, the tip of the nose, cupid bone, and chin. If you are feeling a bit extra, don't hesitate to put some on your shoulders and collar bones. This celebrity makeup look makes your skin glow without the need for a spotlight.
The glass skin makeup is inspired by Korean skincare. | Photo by 邱 严 on Unsplash
Pop It Up
Put a zing to your party look with the pop of funky colour. This look is meant to get you in the mood of partying all night. This works with your eye makeup while keeping the rest of the face minimal. Start with the base - concealer, apply a bit extra on your eyelids to make the colour pop. Don't mind going the extra mile and colour blocking your eyes with complementary colours on eyelids and under the eye. Apply nude lipstick and a soft blush to balance your look.
This look is meant to get you in the mood of partying all night. | Pixabay
(Article originally published by N. Lothungbeni Humtsoe) (IANS/ MBI)
Keywords: Celebrity, makeup, Deepika, Jhanavi, Korean, Red Lipstick, Glass Makeup, Pop makeup