Saturday February 29, 2020

WHO: Millions of People with Epilepsy Reluctant to Seek Treatment Because of Stigma

Nearly 50 million people around the world suffer from epilepsy

Nearly 50 million people around the world suffer from epilepsy. The World Health Organization reports this neurological disease affects people of all ages in all walks of life. VOA

The World Health Organization says millions of people with epilepsy are reluctant to seek treatment because of the stigma attached to their ailment, leading to the premature death of many.  WHO has released the first global report on epilepsy.

Nearly 50 million people around the world suffer from epilepsy.  The World Health Organization reports this neurological disease affects people of all ages in all walks of life.  It says this brain disease can cause seizures and sometimes loss of awareness.

Program Manager in WHO’s Department of Mental Health and Substance Abuse, Tarun Dua says people with epilepsy suffer widespread stigma and discrimination as a consequence of their unusual behavior.

Low doses of topiramate may also increase the risk of oral clefts but to a lesser extent. Wikimedia Commons

“So, in many settings, people with epilepsy they are embarrassed…children are not allowed to go to school, adults are not allowed to work, sometimes not even marry or the right to drive is also not there,” said Dua. “So, these stigma and human rights violations and sometimes also the death that is associated with epilepsy—so premature mortality in epilepsy is three times that of the general population.”

Causes of epilepsy include injury around the time of birth, brain infections from illnesses such meningitis or encephalitis and stroke.  WHO estimates 25 percent of cases are preventable.

Dua says early death among people with epilepsy in low and middle-income countries is significantly higher than in wealthy countries.  She says the stigma associated with epilepsy is a main factor preventing people from seeking treatment.

The World Health Organization reports this neurological disease affects people of all ages in all walks of life. Wikimedia Commons

She says low cost, effective medication to treat the disease is largely unavailable in poor countries as are the number of specialists competent to deal with this brain disorder.

ALSO READ: Researchers Identify Gene Associated with Sudden Death in Epilepsy

“For example, if you look in low and middle-income countries, there is only one neurologist per one million population,” Dua said. “Now, that is definitely insufficient to provide care for all people with epilepsy.  What it means is that we need the non-specialists, the primary care doctors to take care for people with epilepsy.”

Dua says WHO has the tools and evidence-based guidelines that show epilepsy can be successfully treated in primary health care.  She says pilot programs introduced in Ghana, Mozambique, Myanmar, and Vietnam are making huge inroads in closing the epilepsy treatment gap. (VOA)

Next Story

WHO Runs Out of Funds to Tackle Ebola in Congo

WHO Warns It is Running Out of Money to Tackle Ebola Epidemic in DRC

Congolese Ebola
Congolese and the World Health Organization officials wear protective suits as they prepare equipment before the launch of vaccination campaign against the deadly Ebola virus near Mangina village, near the town of Beni in North Kivu province of the Democratic Republic of Congo. VOA

By Lisa Schlein

The World Health Organization is urgently appealing for $40 million to salvage its operation to bring the Ebola epidemic to an end in eastern Democratic Republic of Congo. This is the latest health news.

The Ebola operation in eastern DR Congo’s conflict-ridden North Kivu and Ituri provinces is on financial life-support.  The World Health Organization reports its coffers will be empty at the end of this month.  It is urging donors to step up immediately and contribute the money needed to tackle this virulent disease.

WHO spokesman Tarik Jasarevic says failure to support this operation would be tragic as good progress is being made in containing the Ebola virus.  Over the past two months, he says between three and 15 cases of Ebola have been reported each week.   This is compared to 120 reported cases of Ebola in April 2019.

Congolese Ebola
A person dressed in Ebola protective apparel is seen inside an Ebola care facility at the Bwera general hospital near the border with the Democratic Republic of Congo in Bwera, Uganda. VOA

“Last week there was only one case reported and we are down to only two health zones in eastern DRC where we have Ebola cases.  But again, if we do not receive this funding, we risk obviously to have more spread of the virus.  So, therefore, there is this appeal to get more funding,” he said.

WHO reports 3433 cases of Ebola, including 2253 deaths, for an overall case fatality rate of 66 percent.  Jasarevic says money from the $40 million appeal also will be used for preparedness activities in neighboring countries.

He notes a modest WHO investment of $18 million in helping Uganda set up screening, monitoring and other systems succeeded in stopping Ebola from taking root in that country last year. He tells VOA it is crucial that the Ebola operation not be interrupted because as long as there is one case of the disease, there will be a risk of further spread.

“So, we have to really get down to zero.  We are making progress, but again, whether you have one case, or you have more cases, the activities that you have to put in place are the same.  So, we need to make sure that activities are funded,” said Jasarevic.

Also Read- Higher Intake of Fruits and Dairy Products Reduces Risk of Stroke: Study

There have been eight confirmed cases of Ebola reported from Beni and Mabalako in North Kivu Province in the past 21 days.  But WHO reports there have been no new cases reported for more than 42 days from Butembo and Mambasa Health Zones.  WHO calls the reduction of geographic spread of the Ebola virus and the declining number of cases encouraging. (VOA)