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Dubious Care And Big Bucks By GoFundMe: Study

The American Cancer Society's deputy chief medical officer, said it's important to consider what may drive some patients to turn to unproven remedies.

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cancer, cellphone, U.S.
A radiologist examines the brain X-rays of a patient. In a small study, patients with brain tumors were given genetically modified poliovirus, which helped their bodies attack the cancer. VOA

People seeking dubious, potentially harmful treatment for cancer and other ailments raised nearly $7 million over two years from crowdfunding sites, a study found.

Echoing recent research on campaigns for stem cell therapies, the findings raise more questions about an increasingly popular way to help pay for costly, and sometimes unproven, medical care.

Soliciting money on GoFundMe and other sites eliminates doctors, hospitals, insurance companies and other “gatekeepers” that can be a barrier to expensive treatment, said lead author Dr. Ford Vox, an ethicist and brain injury expert at Shepherd Center rehabilitation hospital in Atlanta. He calls it “the democratization of economic power through social media” but says it can pose an ethical dilemma.

Online fundraising “has a big bright side” when it helps patients pay for legitimate care, he said. “Communities are really being able to rally around people in rough times. That’s fantastic, but there is this very clear dark side” when treatments sought are worthless or even dangerous.

Breast Cancer
This undated fluorescence-colored microscope image made available by the National Institutes of Health in September 2016 shows a culture of human breast cancer cells. For the first time, one of the new immunotherapy drugs has shown promise against breast cancer in a large study that combined it with chemotherapy to treat an aggressive form of the disease. VOA

His study was published Tuesday in the Journal of the American Medical Association.

GoFundMe says campaigns for medical care are increasing and are among the most numerous on its site. They include solicitations for conventional treatment and for unproven alternative therapies.

“We always encourage people to fully research whatever it is they are raising money for and to be absolutely transparent on their GoFundMe page, so donors can make an informed decision on what they’re donating to,” GoFundMe said in an emailed statement.

The researchers examined campaigns posted from November 2015 through mid-December 2017, mostly on GoFundMe. They focused on five treatments sought in about 1,000 campaigns: homeopathy or naturopathy for cancer; hyperbaric oxygen for brain injuries; stem cells for brain or spinal cord injuries; and long-term antibiotics for persistent Lyme disease.

 

Cancers
Women receive cancer treatment at The National Oncology Center in Sanaa, Yemen. VOA

 

While some patients swear they’ve benefited from some of the treatments, there is no rigorous scientific evidence that any of them work for the conditions involved, the researchers said.

The most numerous were solicitations for homeopathy or naturopathy for cancer — 474 requests seeking more than $12 million. About one-quarter of that was raised.

Homeopathic products typically contain heavily diluted drugs, vitamins or minerals said to promote healing, although some have been found to contain toxic amounts. Naturopathy, another alternative medicine practice, sometimes uses homeopathic products, herbs and dietary supplements or body cleanses.

Michelle Drapeau has raised about $7,000 on GoFundMe for homeopathy and other alternative remedies since being diagnosed with advanced stomach cancer in February 2017. The 45-year-old investment banker from West Palm Beach, Florida, credits them with keeping her alive since she stopped chemotherapy over a year ago.

Cancer patient
Cancer patient, flickr

“I wanted to make sure I explored every and all options,” Drapeau said. “It’s vital for everyone to have that opportunity.”

Dr. Leonard Lichtenfeld, the American Cancer Society’s deputy chief medical officer, said it’s important to consider what may drive some patients to turn to unproven remedies. U.S. health care costs are exorbitant and many patients run out of money trying to pay them.

And despite considerable progress against cancer and other illnesses, conventional treatment can’t cure every patient, he noted.

“We should not be judgmental and come out and say this is terrible,” Lichtenfeld said.

Also Read: Nature Gives You A Major Boost In Improving Your Mental Health

“No one wants to hear, ‘You have cancer,’ and especially no one wants to hear that there’s no treatment available that can help you,” he said. “You begin to understand why people may turn to unproven treatments and you can understand why others reach out to try to support them.

“What we need to do is to better inform, even better care for our patients and their families, so they don’t feel this is what they need to do.” (VOA)

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Just Spending 2 Hours a Week in Nature can Work Wonders for Health, Well-Being

It's well known that getting outdoors in nature can be good for people's health

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Nature, Health, Well-Being
People who spend at least 120 minutes a week with nature are significantly more likely to report good health and higher psychological wellbeing than those who do not visit nature at all during an average week. Pixabay

If you are looking for that elusive secret to good health and wellbeing, your search may stop now as a new large-scale study has found that spending just two hours a week in the neighbourhood park may do wonders for your mind and body.

People who spend at least 120 minutes a week with nature are significantly more likely to report good health and higher psychological wellbeing than those who do not visit nature at all during an average week, said the study published in the journal Scientific Reports.

“It’s well known that getting outdoors in nature can be good for people’s health and wellbeing but until now we’ve not been able to say how much is enough,” said lead researcher Mat White of the University of Exeter Medical School in Britain.

“The majority of nature visits in this research took place within just two miles of home so even visiting local urban green spaces seems to be a good thing,” White said.

Nature, Health, Well-Being
If you are looking for that elusive secret to good health and wellbeing, your search may stop now as a new large-scale study has found that spending just two hours a week in the neighbourhood park may do wonders for your mind and body. Pixabay

However, no such benefits were found for people who visited natural settings such as town parks, woodlands, country parks and beaches for less than 120 minutes a week.

The study used data from nearly 20,000 people in England and found that it didn’t matter whether the 120 minutes was achieved in a single visit or over several shorter visits.

It also found that the 120 minute threshold applied to both men and women, to older and younger adults, across different occupational and ethnic groups, among those living in both rich and poor areas, and even among people with long term illnesses or disabilities.

“There are many reasons why spending time in nature may be good for health and wellbeing, including getting perspective on life circumstances, reducing stress, and enjoying quality time with friends and family,” said study co-author Terry Hartig of Uppsala University in Sweden.

Also Read- Countries Approved Projects Worth $1 Billion for Environment, Climate Change

“The current findings offer valuable support to health practitioners in making recommendations about spending time in nature to promote basic health and wellbeing,” Hartig said. (IANS)